Tuesday, April 08, 2008

Living with MS

The MS150 is upon us. We roll on Saturday. In the run up to the ride I wanted to post some things for you to think about, especially if you are considering whether to support the effort.

I found this video on YouTube. It's not long, but the interesting thing to me is the discussion of this couple about how MS changes an entirely family--your plans, your dreams, your expectations of life and the future. The patient is not the only one "living with MS."

That is what is so frustrating about MS. A chronic and incurable disease, it is like a thief that never really goes away. It takes your future if you let it, and just about the time you think you have adjusted, new symptoms arise and your expectations are frustrated again.

But it doesn't have to be that way. I am half way to my fund raising goal, and the medical researchers are much further than that. The breakthroughs in research and treatment are tantalizingly close. There is even a custom vaccine, engineered from one's own genes and immune system, that is in the works at Baylor Medical Center here where we are "living with MS."

This is important to me--made all the more so because Mrs. Greyhound is having difficulties this very week that she has not had in several years. No fancy words. No artful persuasion by a professional writer. MS Sucks. With all that is in me I urge and encourage you to hit the fund raising link, and link arms with us as we show our defiance to this condition.


Anonymous said...

looking forward to riding with you this weekend. i 'shared' your post, put it on my recital webpage, and forwarded it to some people i thought might help.

SWTrigal said...

This disease took my sister, Sara at too young of an age. Have a great ride and thank you for supporting the cause.

Supalinds said...

I will link arms with you!

21stCenturyMom said...

You're really good at this fund raising stuff - apparently I've given twice! I would give 20 times and then 200 if I could.

Di said...

I love your dedication. My family buried my Aunt Sue 4 years ago. She lost everything. She didn't have a husband who is made of the same fiber you are made of. Keep doing the great job you are doing.

Unknown said...

You guys have fun this weekend - I'll be thinking about Mrs. Greyhound.